Quarantined

It is official:  The state of Ohio has issued a “Stay at Home” order.   Only essential services are open.   You can go out to work if you are essential or one can go out to get food … that is about it.

Today is officially the first day of the order.   I started yesterday, so today is day #2 of full stay at home mode for me.   We had been staying home quite a bit before the order so it does seem like it has been going on longer.   We are to be at home at least until April 6th.  which is about 2 weeks.

With my Ulcerative Colitis, even though I no longer have my diseased colon, I am considered an auto-immune patient.   With this coronavirus that is one of the population that should be more careful and may have worse systems of the virus if you should get it.

One of the things that I had continued doing was my 12 step meetings.  Now that the virus is starting to spike in Ohio and we are asked to stay home …. I am going to have to join the virtual meeting crowd.   Our club is still open for those who choose to go in person.   I personally think we should not be open, but I understand those who need the in person aspect.  We have spoken to our local police department and they are aware of who we are and what we are doing and why we are still open and they are ok with it.  Being on the board, I feel like I am abandoning the club and the people, but I also have to look out for myself.    I had a really hard time coming to terms with the fact that I shouldn’t be going to in person meetings.    This is another good lesson for me in giving up some control of my responsibilities.    I am not the only person in the program that can do what I do.

Our business is still open and Steve is still occasionally going into to the office to help navigate this new normal for the company.   I hope and pray he does not bring any of the virus home and that our employees stay well.   They are taking a lot of measures to keep everyone safe and well.

So day #2 of me being home, I am doing what I can to keep myself busy and entertained. It will be interesting to see how this whole thing plays out.   We all hope it will be quick with a low number of deaths and those affected, but only time will tell.   If everyone would heed the words of the government and stay home we could get over this a lot sooner.   I am trying my best to keep taking it one day at a time, but it is still scary!!!

 

 

 

Original Care Team

I had a wonderful care team made up of my primary care doctor, my psychologist and my chiropractor.   Each one of these people were essential in helping me deal with my Ulcerative Colitis, depression/anxiety and in helping me to get sober.  They were an important part of my life and making sure I continued to live.

My primary doctor worked really hard in trying to control my Xanax intake and my obsession with self harm.   He referred my to my GI doctor who in return referred me to the Cleveland Clinic for colon removal surgery.   He took good care of me after that surgery and took my phone calls at all hours.  This physician really cared about me, was a family friend and went the extra mile to ensure my safety and health. He retired (2015)

My therapist worked with my doctor.   It was her who called him and said I needed treatment for the addiction to benzo drugs.   My therapist helped with so many mental challenges including my diagnosed clinical depression and general anxiety disorder as well as the addiction / alcoholism and the self harm.    She knew me most times better than I knew myself.    I always told her I would never let her retire because I needed her in so many ways.   She retired (2018).

My chiropractor who became a friend was a great help during my illness.  When I could not eat due to the effects of the Ulcerative Colitis she delivered supplements to my home.  When my mental health started getting wacky she referred me to the local psychologist who became my therapist for 15 years.   She has helped me through thick and thin.   It was my friend and chiropractor who I went to when I was told I had an addiction issue from my therapist to ask her thoughts and what I should do regarding going to treatment.  It was her who took me to my first AA meeting.  She helped me heal from my car accident.   She has taken care of me and my girls and has been a great asset to our health.   Today was our last appointment …. she is retiring.

The above care team was the best and they all went far above the call of duty to care for me.    I don’t know what I would have done or where I would be without them.   Probably not alive.   Even though I have grown and have a handle on my mental health for the most part and little problems with the no colon / Jpouch I feel like I am now left to my own devices.   I don’t do well with change and things have changed greatly and life continues to move on.

I have a new therapist who I can really connect with who I saw on occasion in past.  It is a good fit and she is very helpful to me.    She is always there to return a phone call at all hours and to talk me down no matter what the problem.   I have a new physician, I like her, but she doesn’t know me like my original doctor or my (real) history.  Medicine has changed and it is almost impossible to get an appointment when needed.  I will try the new chiropractor at the office, but it won’t be the same.    I retired so I can not complain when others do the same especially since they are older than I.

So really I have to put my big girl pants back on and embrace the change.   I do miss those from my original care team but it has been years since my surgery, my mental health diagnosis, and addiction.  They have all moved on and maybe I need to do the same.

And the Point Is …..?

Does anyone ever really think ….. What is the point?

I often ponder why I was put on this earth and what I am supposed to accomplish.   It is a heavy question and a burden.

I know I am supposed to be a good person of faith, love and compassion.   But is there more?    Was I put on this earth to suffer with my disease of Ulcerative Colitis, addiction, depression and anxiety so I could help and be of service to others?   Surely I didn’t go through those things for no reason …. the outcome of those issues is that I am a stronger more compassionate understanding individual.  Maybe it is all to help me grow into the person that I am supposed to be.   I don’t know.

For awhile I thought my purpose was to be a Mom and it was, but my children are grown and on their own now.   Yes, I am still their Mother, but in a different capacity.

Maybe there is no point after all and it is just life and then we die.

But I have to believe there has to be a purpose to this journey here on earth or there wouldn’t be a point to be here and to participate in this life.

I often pray to know God’s will for me and the only thing that I know for sure is that He wants me to be Sober and of Service …. maybe that is the point and the only point and I  have to let that be enough, but is it enough?

 

April 19th

Today is the anniversary of my first surgery to create my JPouch due to the disease of Ulcerative Colitis.    It was April 19, 2005 … 14 years ago.   It is hard to believe how sick I was in 2003-2005.   I couldn’t eat, I definitely couldn’t drink alcohol.   I was tired, irritable, very thin (says the now fat girl) and always in pain and in the bathroom.    I look back on those days and it was complete misery.

I was anxious, I was clinically depressed.   I was on so medication to treat the UC that nothing worked to help the depression and anxiety.   That is really when my love affair with Xanax started that I eventually would be come addicted to.    I was on high doses of prednisone which made my mental symptoms worse, but it was the only thing that would remotely control the pain and bleeding from the UC.   At the time it was a pitiful existence.

I had my surgery at the Cleveland Clinic which was tops in treating bowel disease.    I was so apprehensive to have this surgery.   It scared the hell out of me, in fact I was pretty sure I was going to die having this surgery or die if I didn’t.    If you don’t know what a JPouch is look it up, it is complicated, but in a nutshell they remove your diseased colon – which was all of it and create an internal pouch for waste from you small intestine.    In 2005 it was an open surgery where the cut you open to remove the large intestine, today it is way less invasive.   I had an illeostomy bag for 3 months and another surgery in July to remove that and connect everything.

It is the most painful and traumatic thing I have every been through.   With both surgeries I would say it took about a year to fully recover to my new normal.

During this time I became very spiritual.   Praying the Rosary, Novenas and just talking to God.    I felt very close to my higher power during this time and probably would not have survived with out my faith.   I even had the anointing of the sick before the surgery.   It helped me cope.

Even after I recovered the anxiety and depression lingered.    The Xanax usage continued to increase and the drinking was a problem, because internally my make up was now different and I had the brain of an addict.

Today, 14 years later, I am healthy, I am sober and I can eat just about anything (and obviously I did to make up for lost time).    I am grateful for the healing this surgery has brought me.   They say you are not cured after you have the surgery.   Problems still can arise, but they are few and far between.   I thank God for the miracle of medicine and all the people who took care of me and my family during that time.

I always remember April 19th.